What is an Ambulatory Wheelchair User?

"But I just saw you stand up!"

If you are an ambulatory wheelchair user, you have likely heard this phrase, or felt the weight of the "side-eye" that comes with it. There is a common misconception that wheelchair use is a binary: you are either unable to walk at all and use one 100% of the time, or you do not need one at all.

As an ambulatory wheelchair user myself, I am here to tell you that disability is not one size fits all.

If you’ve ever wondered, 'Can you use a wheelchair if you can walk?', the answer is a resounding yes. An ambulatory wheelchair user is someone who uses a mobility aid but can also walk or stand under certain conditions.

According to Gov.uk, around one third of wheelchair users are ambulatory, often managing chronic pain, fatigue, or conditions like POTS, EDS, or MS that make walking unsafe or unsustainable.

Defining the Term: What Does "Ambulatory" Actually Mean?

In medical terms, "ambulatory" simply means the ability to walk. Therefore, an ambulatory wheelchair user is someone who uses a wheelchair for mobility but has some level of ability to stand or walk in certain circumstances.

For many of us, the wheelchair is not a "last resort" or a sign that we have "given up." It is a tool. Just as someone might use reading glasses to see clearly, we use wheelchairs to navigate the world without debilitating pain, dangerous fatigue, or the risk of injury.

The Statistics You Need to Know

One of the most surprising facts for the non-Disabled public is just how common this is.

• One-Third: Around one third of all wheelchair users are ambulatory.

• Invisible Disabilities: Many ambulatory users have invisible illnesses or chronic conditions, meaning you cannot see their disability just by looking at them.

• Fluctuating Needs: Mobility is often fluid. A person might be able to walk around their kitchen to make tea but require a wheelchair to navigate a shopping centre or a train station.

Why Someone Might Use a Wheelchair if They Can Walk

If someone can walk, why would they choose to use a chair? It usually comes down to three main factors: Pain Management, Energy Conservation, and Safety.

1. Chronic Pain and Joint Instability
   
   

Conditions like Ehlers-Danlos Syndrome (EDS), Fibromyalgia, or Osteoarthritis can make every step feel like walking on broken glass. Using a wheelchair reduces the physical load on the joints, allowing the user to travel further than they ever could on foot.

2. Energy Limiting Conditions

For those living with ME/CFS (Myalgic Encephalomyelitis) or Multiple Sclerosis (MS), energy is a finite resource. This is often explained through Spoon Theory, where every activity costs a "spoon." Walking 100 metres might use up all the energy a person has for the entire day. By using a wheelchair, they conserve that energy so they can actually participate in life once they arrive.

3. Postural and Neurological Issues

Conditions like POTS (Postural Orthostatic Tachycardia Syndrome) can cause a person’s heart rate to spike or their blood pressure to drop the moment they stand up, leading to fainting (syncope). A wheelchair provides a safe, seated environment that prevents these episodes.

The Stigma: Why We Need to Stop the "Miracle" Narrative

We have all seen "inspirational" videos of a wheelchair user standing up to hug someone, often framed as a miracle. While these moments can be moving, they unintentionally fuel the stigma that seeing an ambulatory person stand up is a "gotcha" moment or proof of "faking it."

Disability is not defined by a single moment.

We need to shift our focus from the person to the environment. When I stand up to reach a shelf, my need for a mobility aid doesn't disappear. The wheelchair remains essential because our public spaces are inherently inaccessible. In the social model of disability, it is the lack of universal design and the presence of ableist assumptions that disable me, not the dynamic ways I choose to use my body.

How to Be a Better Disability Ally

• Don't Assume: If you see someone stand up from a wheelchair, do not assume they are "cured" or exaggerating their needs.

• Respect the Space: Accessible toilets and disabled parking bays are for all Disabled people, including those who may look "fine" when they exit their vehicle.

• Speak Directly: Always address the person in the chair, not their companion or carer.

• Ask First: Never touch or move someone’s wheelchair without their explicit permission. It is an extension of our personal space.

How Sociability Supports Ambulatory Users

One of the biggest hurdles for ambulatory users is "the unknown." We need to know exactly how much walking is required at a venue.

• Is the "accessible" entrance actually a long walk from the car park?

• Are there places to sit and rest throughout the building?

• Is the floor surface easy to navigate if I am feeling fatigued?
  
  

This is why our photo-led mapping with alt-text is so vital. By combining clear visual layouts with descriptive accessibility data, an ambulatory user, or anyone navigating a venue's environment, can decide: "Today is a walking day for this venue" or "Today, I definitely need my chair." Whether you are assessing a space visually or utilising screen readers to process our detailed entry descriptions, having the full picture beforehand removes the guesswork.

Frequently Asked Questions (FAQ)

Can you be a wheelchair user and still walk?

Yes. This is called being an ambulatory wheelchair user. Many people use wheelchairs to manage pain, fatigue, or balance issues, even if they can walk short distances.

Is it "lazy" to use a wheelchair if you can technically walk?

No. It is a medical necessity used to prevent "crashes" in health, reduce chronic pain, and improve the user's quality of life. It is about independence and freedom.

What conditions cause people to be ambulatory wheelchair users?

Common conditions include Multiple Sclerosis (MS), Ehlers-Danlos Syndrome (EDS), Fibromyalgia, POTS, ME/CFS, and various forms of Arthritis.

How should I react if I see a wheelchair user stand up?

React exactly as you would if they stayed seated: with respect. Their ability to stand for a moment does not negate their impairment, health-condition or their need for a mobility aid.

Does Sociability only map places for full-time wheelchair users?

Not at all. Our detailed accessibility information is designed for everyone, including ambulatory users, those with non-visible disabilities, and people using canes or walkers who need to plan their energy expenditure.

Whether you are a full-time wheelchair user, an ambulatory user, or someone whose access needs change day to day, Sociability is designed for you.

Download the app to find venues with detailed information on walking distances, seating, lift access, and sensory considerations, so you can decide whether today is a walking day, a chair day, or somewhere in between.

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